Question with 1 note
chlo-cf asked: I haven't had my blog for long so i guess I'm new to the 'CF community' but it's so nice to see that you're engaged, congratulations!
Well, welcome I guess!
And thank you very much!
schoolofcharmmentality asked: YAY! CONGRATS! (I've been wondering if and when this would occur, good stuff) :D
Thank you! :D A lot of other people were wondering too, so you’re not the only one in that camp! haha
thegirlwiththecftattoo asked: Congratulations on the engagement! :D
Thank you! :D
Post with 6 notes
She said yes. Which is awesome.
I’d like to write a lot more about this, but not sure what to write I’d end up rambling, I’ll leave it at I’m very very happy.
Photo with 4 notes
Location of my #portacath a device under my skin which needles are put in for IV antibiotics. All my veins are dead. The tape covers my nipple 🙊 #cf #cfawarenessmonth
Forgot how much of a bastard Hypotonic is. I’m not prescribed it for home, I generally go on it once a year in hospital.
Post with 1 note
Well today marks 14 days in hospital, and usually 14 days I end up going home, but unfortunately I’m staying in a few more days.
Haven’t done a lung function test since thursday or friday, that was at 49% usually I’m at 50-55% at discharge. So unless that’s dropped that’s pretty much at discharge level.
Unfortunately my infection markers are up to 11.3 (nothing to worry about I guess, but they shouldn’t be going up) and my exercise tolerance isn’t back (by that I mean I’m still getting breathless when I walk).
So the general plan of action is some more IVs same ones (mero/tob) hypotonic saline twice a day to try loosen any crap in my lungs and the gym action, hopefully a couple/few more days of that and my exercise tolerance will be back to where I want it to be.
As I’m pretty much there/well the Dr was pretty hesitant about prolonging the IVs as we all know how toxic they are, particularly the Tob. (Yay for possible deafness and renal failure!) So I won’t be in for too much longer.
Looking forward to getting out, getting back home, spending time with the girl and the kittens!
Page 2 of 247