Dan // In a relationship // Leeds, UK. // Realist // Cystic Fibrosis // Photographer // Critical thinker.
I type when I can be bothered, about my life, my CF and other things.
I have a wide varitiy of intrests, Science, Comics, Films, Music to name a few things.
I'll also annoy you with my instagram posts. Don't take me seriously, also I have shit tattoos.
Other places to stalk me.
My Goodreads
My Last.fm
My Twitter
Question with 1 note
chlo-cf asked: I haven't had my blog for long so i guess I'm new to the 'CF community' but it's so nice to see that you're engaged, congratulations!
Well, welcome I guess!
And thank you very much!
schoolofcharmmentality asked: YAY! CONGRATS! (I've been wondering if and when this would occur, good stuff) :D
Thank you! :D A lot of other people were wondering too, so you’re not the only one in that camp! haha
thegirlwiththecftattoo asked: Congratulations on the engagement! :D
Thank you! :D
Post with 6 notes
So I proposed to the girl today…
She said yes. Which is awesome.
I’d like to write a lot more about this, but not sure what to write I’d end up rambling, I’ll leave it at I’m very very happy.
Photo with 4 notes
Location of my #portacath a device under my skin which needles are put in for IV antibiotics. All my veins are dead. The tape covers my nipple 🙊 #cf #cfawarenessmonth
Chat reblogged from Once more Into The Fray with 177,376 notes
zomg lol!11!!!one
- Hair: What hair color looks best on you and what's your natural color?
- Skin: Do you tan easily?
- Eyes: What is your favorite show to watch?
- Nose: What is your favorite perfume/candle fragrance?
- Mouth: Do you want to kiss anyone right now?
- Tongue: What was in your last meal?
- Windpipe: Do you sing?
- Neck: Do you wear necklaces?
- Ears: How many piercings do you have (if any)?
- Cheeks: Do you blush easily?
- Wrists: Have you ever broken a bone?
- Hands: Are you an artist/writer?
- Fingers: Do you play an instrument?
- Heart: Are you in love? If so, does the one you love know?
- Lungs: Do you smoke cigarettes?
- Chest: Are your maternal/parental instincts strong?
- Stomach: Do you feel confident in your body image?
- Back: Are you a virgin?
- Hips: Do you like to dance?
- Thighs: Has anyone ever called you fat or ugly?
- Knees: Have you ever cheated on someone?
- Ankles: Have you ever been arrested?
- Feet: Do you ever wear heels just for the hell of it?
- Toes: Do you like country music?
Source: therealbenedict
Forgot how much of a bastard Hypotonic is. I’m not prescribed it for home, I generally go on it once a year in hospital.
Post with 1 note
Well today marks 14 days in hospital, and usually 14 days I end up going home, but unfortunately I’m staying in a few more days.
Haven’t done a lung function test since thursday or friday, that was at 49% usually I’m at 50-55% at discharge. So unless that’s dropped that’s pretty much at discharge level.
Unfortunately my infection markers are up to 11.3 (nothing to worry about I guess, but they shouldn’t be going up) and my exercise tolerance isn’t back (by that I mean I’m still getting breathless when I walk).
So the general plan of action is some more IVs same ones (mero/tob) hypotonic saline twice a day to try loosen any crap in my lungs and the gym action, hopefully a couple/few more days of that and my exercise tolerance will be back to where I want it to be.
As I’m pretty much there/well the Dr was pretty hesitant about prolonging the IVs as we all know how toxic they are, particularly the Tob. (Yay for possible deafness and renal failure!) So I won’t be in for too much longer.
Looking forward to getting out, getting back home, spending time with the girl and the kittens!
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