May 2013
42 posts
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I’ve had a few pints of shitty booze and a good whiskey tonight. Yeah.
Nothing more.
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chlo-cf asked: I haven't had my blog for long so i guess I'm new to the 'CF community' but it's so nice to see that you're engaged, congratulations!
schoolofcharmmentality asked: YAY! CONGRATS! (I've been wondering if and when this would occur, good stuff) :D
thegirlwiththecftattoo asked: Congratulations on the engagement! :D
So I proposed to the girl today...
She said yes. Which is awesome.
I’d like to write a lot more about this, but not sure what to write I’d end up rambling, I’ll leave it at I’m very very happy.
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zomg lol!11!!!one
Hair: What hair color looks best on you and what's your natural color?
Skin: Do you tan easily?
Eyes: What is your favorite show to watch?
Nose: What is your favorite perfume/candle fragrance?
Mouth: Do you want to kiss anyone right now?
Tongue: What was in your last meal?
Windpipe: Do you sing?
Neck: Do you wear necklaces?
Ears: How many piercings do you have (if any)?
Cheeks: Do you blush easily?
Wrists: Have you ever broken a bone?
Hands: Are you an artist/writer?
Fingers: Do you play an instrument?
Heart: Are you in love? If so, does the one you love know?
Lungs: Do you smoke cigarettes?
Chest: Are your maternal/parental instincts strong?
Stomach: Do you feel confident in your body image?
Back: Are you a virgin?
Hips: Do you like to dance?
Thighs: Has anyone ever called you fat or ugly?
Knees: Have you ever cheated on someone?
Ankles: Have you ever been arrested?
Feet: Do you ever wear heels just for the hell of it?
Toes: Do you like country music?
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Forgot how much of a bastard Hypotonic is. I’m not prescribed it for home, I generally go on it once a year in hospital.
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Well today marks 14 days in hospital, and usually 14 days I end up going home, but unfortunately I’m staying in a few more days.
Haven’t done a lung function test since thursday or friday, that was at 49% usually I’m at 50-55% at discharge. So unless that’s dropped that’s pretty much at discharge level.
Unfortunately my infection markers are up to 11.3 (nothing to...
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pleasepassthesalt replied to your post: What possesses people to make Facebook profiles…
Uh oh. One of my dogs has a twitter account.
Fair play. I just don’t see the point to it myself, each to their own though
What possesses people to make Facebook profiles and twitter accounts for their pets? Cringe.
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WESTBORO BAPTIST CHURCH TO PICKET JEFF HANNEMAN’S... →
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I don’t know how other CF wards monitor weight, but here we are weighed on admission and then every other day. I’ve been in for 11 days, and since admission my weight has done this, in order:
Put 2kg on, loose 1kg, put 500g on. The 2kg I put on in about 4 days, I suddenly lost the kilo within 2 days. What the hell, MAKE UP YOUR MIND, BODY.
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Well, I'd never thought I'd say it....
But it seems as though Miley Cyrus has raised a little awareness for CF (I might be late to this, I don’t know?)
She has a tattoo of ‘Just Breath’ (Hate that term, but whatever.) under her left boob. Aparently one of her best friends died from CF…
Saying that though both her Grandfathers died of Lung Cancer, I found this quote, where I she was talking about all three...
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I like how Marvels Civil War could be compared to the US’ debate on gun control at the moment, least you can draw up similar connotations.
Without the whole Super heroes battering each other of course.
Regulation can be, and, is a good thing if done correctly. But of course you’re always going to have people opposed to it.
Saturday night and it’s still hospital time. I think I’m going to finish reading (Marvel) Civil War. Maybe read a few more bits and bobs (possibly start Age of Ultron). And do godknows what else.
Inane post #256
Only just started listening to Manchester...
School boy error.
What a fool I am!
A pigeon just flew into my window. Don’t think I’ve jumped as much in my life.
chlo-cf:
Want to write to CF trust and ask for them to make an advert to raise awareness, fair enough ad’s cost money but the donations they would get would cover the cost and much more, feel like CF is in the dark
I’m guessing you mean a TV ad? The cost of air time for an ad is silly money, depending on channel and time. Costs to show an ad during BGT/X-factor are insane for instance.
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Yesterday I escaped the hospital for a few hours, I bought a small bunch of tulips for the girl and visited her at work. Because I’m a romantic bastard.
I then took her to Iron Man 3, which is pretty decent. All in all a good day.
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Lungs are up to 49% from 43%. Hopefully get a couple more percent rise before I get discharged!
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April 2013
109 posts
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schoolofcharmmentality replied to your post: Can’t believe how dry and fucked up my skin gets…
I just drink so much that I need to pee all the time - helps, but is obviously irritating haha
I’m pretty crap at drinking water when I’m in, must get into a better habit of drinking more water, it would help!
Cheers for the reminder!
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Can’t believe how dry and fucked up my skin gets while I’m on IVs.
Even though I moisturise (yep, I do that shit, this mother fucker wants to look young) once or twice daily, my face and eyelids still feel dry and crappy. FU IV
Cystic Fibrosis Confessions: “I hate saying this,... →
schoolofcharmmentality:
danimalxiii:
cfconfessions:
“I hate saying this, because I don’t want to sound insensitive, but I hate the fact that cancer gets all the limelight. Everyone knows about cancer, everyone sympathises with cancer, there are treatments and cures and funding that improve everyday. And here we all are, sitting on chemo strength…
I’m not saying it doesn’t suck, but it’s...
